March 2013
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Lessons on Being Feminine
Lessons on Being Feminine
We now approach the end of February, and the end of Turner Syndrome Awareness Month (I was diagnosed with TS at four months old). TS is a chromosomal abnormality that occurs in 1 out of 2000 females when part of the X chromosome is either fully or partially deleted. It can cause short stature (growth hormone deficiency), heart complications, hearing loss, ovarian...
November 2012
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My Not-So-Short TS Story (Bio)
I was born a month early, with puffy hands and feet as well as a hole in my heart. My mom had a feeling, call it intuition, that there was something more going on with me. She brought up her worries to my pediatrician, and asked them to order a karyotype. A mother’s intuition is always right. I was diagnosed with Turner Syndrome at the age of four months. I will always be thankful to her for...
August 2012
1 post
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Alone, Together, Connected: The Virtual Choir...
Nothing could prepare me for how isolated and vulnerable I was about to become. I had practiced my part of the piece “Water Night” (Alto 1) for a month with the conducting track, and at this moment it had become like a mantra. It was the night of the original deadline for video submissions, and a massive number of people had recorded their videos - so massive that the Virtual Choir...
July 2012
4 posts
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Dreams (October, 2007)
When the world is cast Amongst silver hues and stars We are not part of The Earth, but rather we fly To some far off land An abyss of mirages Tangled in our mind Between the clouds and the truth
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Woman in the Waterfall (September, 2007)
Enlaced in a trance As the sunlight streams upon her water droplet skin Being washed, caressed by the flowing falls, She beams a radiant hue of gold Sighing in her solitude She resides in the relaxation of the whispers Of the rushing water on her bare nakedness With a smile she forgets the convention of clothes She bends as a slender bamboo Gently following her curves with her fingertips Inhaling...
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Ocean (September, 2007)
Inhale, exhale - breathe - in, out - quiet pulses sigh - breathe - out - ecstasy -
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The Sleeper (July 28th, 2012)
The sleeper, close-eyed lays with one hand curved open toward fluttering drapes
June 2012
4 posts
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Prophecy of Springtime (April 17, 2009)
The prophecy within Springtime – How wonderful it must be, full of perfumes And the delicacy of infant’s movements Where Time is held in the hands of days Twisted in knots, like our words And the tones escaping from our mouths We yearn to drown in each others sounds Breathing — quenching heartbeats — And we ache to die within our silence, to become alive again
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Sun Bursts in Springtime (April 17, 2009)
Small suns burst colors In a sea of green they dance Bourne by blue sky-breath I forget my path Hidden in the deep vastness; Spring sapling, sun-burst – My feet travel quietly Yearning your secret pathways When sky and Earth touch My hands finally give way After long silence Small stars burst in loss The many eyes wrapped in night – The path of the years Our hands become trees, Bony and veined by...
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Snow (Feb 7, 2010)
Snow - Secret dreams Caught in hair; Winter illuminates you just So -
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She Travels from the Sea to the City (August 2008)
Cloaked in the lingering storm clouds of summer rain She softly treads above the mists of the city’s gaslights - Her feet are sore from running in the eyes of hurricanes And her muscles tremble from being starved of life The streets are abandoned and filled with echoes; Windows are boarded up with planks of wood And only the wind shouts the tale of misfortune Of a plague that has rendered bustling...
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Moonstruck Fireweed (September 2008)
I - Dawn Empty quietude - - (elegant flowers Sweep in renewal as the fire-river Bleeds from the glaciers) cold dewdrop showers Cleanse the awakening - - purple flames shiver II - Afternoon Mountain-breath exhales from the peaks and quiver Beneath the valleys - - Flames burst in their rite! (Eternity burns in purple slivers) - - Sun loathes such a beauty! Embodied height! III - Moonstruck Sleepy...
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Nocturne (October 2008)
Sky-threads unravel In wisps of midnight blue stars; Two rivers entwine
May 2012
14 posts
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“Beauty beings with attitude”
Momentous (November 2008)
The Earth seized in the gasp of the universe; Only our bodies play in the sunlight, Entangled in the shadows of the fields
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Winter Triptych (Decmber 2008)
I. The darkness is dampened with ice, A white infinitum calling its prayer – Humble and hushed – Across the frosty, undisturbed Earth II. 1. In the morning-brilliancy, A soft hum presides over the blue-scape (Softer is the falling snow Tiptoeing from above) Bright-bathed light illuminates The being of those eyes Who gaze at such purity and Earthly rapture As to be blinded by all else 2. Amidst...
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After A Winter Sunset (January 2009)
When the sky lays down to rest, Blushing gold and fuchsia Underneath its brow, a crest Of sinking clouds a-glow in fire The coldest night comes, pale, A drone of silence against a milky orb – The solemn crunch of snow follows Lonely walkers on their path The breath of heaven, soft, escapes From some unknown dwelling place But between you and I the many shapes Of blue wraps us within its trace
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She Blossoms Before Me (Feb 2009)
She Blossoms Before me, The tender sprig With youthful gazes; Eyes of a shimmering Sea draped with sunlight and moon – Now she emerges, curved and breasted, This child who once skipped rocks across the sky Her eyes are steady (but they still twinkle) Her hair is pulled back (but still untamed) Her tired hands and feet travel swiftly Alone along the pathways As she is led by will; Blue footprints...
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Moonlight Haikus (July 2009)
I Shining silver trees - Veins of the Summer moonlight Become our pathways II Our feet are polished With the dew of blue grass stains While the stars open III Our bodies lighten In the radiance of fireflies, Sky held in our lips IV Silver ecstasy! Fountains of stars, trees, and limbs - Liquid moon stains us
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living4urglory-deactivated20130 asked: Hi!! Oh my gosh...you have TS too!! So do I. I've never met anyone else with it. You're so inspiring, writing that blog post about it all. Wow. Thank you. You have just made my YEAR! :)
April 2012
8 posts
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“As soon as you trust yourself, you will know how to live.”
– Goethe
Inspirational Quote Of The Day
jasminbalance:
“Intense love does not measure, it just gives.” - Mother Teresa
Source: http://www.jasminbalance.com/inspirational-quote-of-the-day-4/
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“Be like the sun for grace and mercy. Be like the night to cover other’s...”
– Rumi
March 2012
4 posts
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“To know that even one life has breathed easier because you have lived, that is...”
– Ralph Waldo Emerson
February 2012
2 posts
Anonymous asked: Hi, just wanted to let you know that you're beautiful, loved, special, and that you matter. <3
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January 2012
8 posts
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After Thoughts: Bohemian Reflections (November 5,...
A skeletal shadow in the weary night Fumbles his change through his boney fingers (Enough for a small sandwich at the café perhaps) And wanders into the dust of the gaslight’s smoke
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Autumn Opens Silently (Sept 21, 2008)
Autumn opens silently As its draft comes, brittle — Crisp air transforming In meditation of Still humidity — Nature exposes itself Against the chill, Descending into sleep, Ascending into inner awakening When darkness comes earlier and earlier Creeping against the World Everyone sinks into monk-solitude While something tugs at them with delicate hands And all existing forces are...
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Listen
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“Sometimes forgiveness is the greatest gift one can give to another”
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December 2011
26 posts
Im h3r3 4t your inconv3ni3nc3:... →
jammydodgerdestruct:
I kind of want to do a Project for Awesome video this year.
I really want to find a Turner Syndrome charity to support, but I don’t know of any.
So, help me followers or people in the tracked tags?
Does anyone know of such a charity?
I know not a lot of people know…
Kimberly Gamson would be a great person to talk to. She’s on Facebook. She is very...
Anonymous asked: Hi there! Uuhm.. I really don't know where to start.. But, I've read in your bio that you also have Turner Syndrome. Me too! How do U live with it? Maybe we can talk about it more often, if u want ^^
